The rights of people with dementia -Jackie Bridges – Professor of Older People’s Care, University of Southampton

Not so long ago CLAHRC East of England Research Capacity in Dementia Care Programme (RCDCP) joined forces with the University of Southampton Alzheimer’s Society Doctoral Training Centre to provide a European Summer School for 17 dementia care doctoral students. Hosted by the University of Linköping in Sweden, the programme enabled participants to share ideas, build international partnerships, and learn from leaders in dementia care research.

Professor Jackie Bridges explains some of the lessons we can learn about caring for people with dementia.

She was particularly struck by the approach of a day centre she visited whilst on the trip.

Should Wessex implement ReSPECT process? – The NIHR CLAHRC Wessex hosted event May 11, 2017

The event in Southampton attracted organisations* from across the Wessex region and beyond and a wide range of people including the public, paramedics, nursing staff, clinicians, managers and researchers.

Many stakeholders were represented bringing together 44 delegates, all there to examine and reflect on whether the ReSPECT approach to decision making for emergency care should be adopted.

Who cares? Genie explores the lives of young carers

According to research by the Children’s Society there are estimated to be 700,000 young carers aged between 5 and 17 years old in the UK.

That figure surprise many people, and the charity goes on to explain how caring at a young age can impact a young persons’ education, health, development and quality of life.

Prioritising the fundamentals of care with patients, professionals, carers and the public – Anya de Iongh

As PPI Champion for the Fundamentals of Care theme within NIHR CLAHRC Wessex, I’ve a great experience and opportunity to be an equal member of a team developing the research priorities for this area of work. Crucially, these weren’t priorities that we developed together in a closed room, but rather they were co-produced at several stages.

Are some social networks better for self-management than others? Dr Ivaylo Vassilev, Senior Research Fellow

The everyday management of a long-term condition is almost never done by individuals in isolation from others. The networks of relationships around people may include family members, friends, neighbours, colleagues, health professionals and even pets all of who play an important role in the management of long-term conditions. This is through, for example, their knowledge, support, help with accessing services, resources and valued activities.

NATIONAL CONSULTATION ON EMERGENCY CARE AND TREATMENT PLAN: IMPLICATIONS FOR THE TREATMENT ESCALATION PLAN (TEP) PROJECT? Professor Alison Richardson

Having conversations about the best course of action in the event a person’s condition deteriorates is difficult for everyone involved, whether it is the patient themselves, their family or carer and the clinician.

After an initial study on Advance Care Planning (A. Richardson, S. Lund¹), research into the current application of treatment escalation plans across the country, and early engagement with some of the acute trusts in the Wessex region, it was apparent there was a desire to improve this process.

The importance of carers in support for people with Parkinson’s – Claire Ballinger and Ali Rowsell

Around one in 500 people has Parkinson’s, a condition affecting movement, and sometimes also causing pain, tiredness and low mood.  There is currently no cure; however drugs and rehabilitation therapies can help to relieve the symptoms.  Although not the same for everyone, Parkinson’s is progressive, and in the later stages, people often require additional help.