Almost a year on from my last post here and I’ve done a lot of work on my developing my research proposal – reading, learning, literature reviewing – but sadly not a lot has changed for people with dementia in acute hospitals. My desire to improve the quality of care, especially at meal times has certainly grown.
Could this statement be the one that encapsulates the perception that mental health services are frequently unable to help people with mental health issues?
A research participant in a study I’m conducting into support networks of people with long term mental health problems outlined what she saw as some of the problems with her encounters with health professionals in the mental health system.
Professor Anne Rogers explains how weaker social ties play a role in helping people manage a long term illness.
With ever more attention on the NHS and how many nurses and doctors are needed to give people the best care, one part of the health equation is going unnoticed – What attention is being paid to the role of the patient and their extended network of relationships? In early 70s West Coast America a piece of research by Anselm Strauss and colleagues examined a set of questions on ‘self-care’.
So it’s been a few months since the last update on our work, so where are we now?
Well our Younger Onset Dementia Assessment project is now starting to interview patients, carers and clinicians about their experiences of care in younger onset dementia. This will help define our assessment toolkit for testing and implementation in a wider group of people with younger onset dementia. An important part of this study will be to improve the recording of quality of life (QoL) in people with younger dementia, and helping better understand what factors influence QoL in this particular group of patients and their carers.
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