Category Archives: long term conditions

NATIONAL CONSULTATION ON EMERGENCY CARE AND TREATMENT PLAN: IMPLICATIONS FOR THE TREATMENT ESCALATION PLAN (TEP) PROJECT? Professor Alison Richardson

Having conversations about the best course of action in the event a person’s condition deteriorates is difficult for everyone involved, whether it is the patient themselves, their family or carer and the clinician.

After an initial study on Advance Care Planning (A. Richardson, S. Lund1), research into the current application of treatment escalation plans across the country, and early engagement with some of the acute trusts in the Wessex region, it was apparent there was a desire to improve this process.

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The Doctor will see you now: Using models to think about self-management – Professor Anne Kennedy

My colleagues and I recently published a paper which describes how we created a model to show how people with diabetes become less dependent on primary care and more able self-managers.

We used maps created by general practice staff to show how their patients progress through the system following diagnosis.

In the current system, once treatment has been decided on, the frequency of appointments decreases and people are expected to self-manage with support from regular review appointments. Seeing the model and talking it through with GPs and others helped us to consider some of the shortfalls in the system.

Continue reading The Doctor will see you now: Using models to think about self-management – Professor Anne Kennedy

Love thy neighbour – why friends may be the answer to staying well.

Professor of Health Systems Implementation in the Faculty of Health Sciences, University of Southampton and Research Director of the NIHR CLAHRC Wessex
Professor Anne Rogers is Professor of Health Systems Implementation in the Faculty of Health Sciences, University of Southampton and Research Director of the NIHR CLAHRC Wessex

Professor Anne Rogers explains how weaker social ties play a role in helping people manage a long term illness.

With ever more attention on the NHS and how many nurses and doctors are needed to give people the best care, one part of the health equation is going unnoticed – What attention is being paid to the role of the patient and their extended network of relationships? In early 70s West Coast America a piece of research by Anselm Strauss and colleagues examined a set of questions on ‘self-care’.

Continue reading Love thy neighbour – why friends may be the answer to staying well.

The importance of carers in support for people with Parkinson’s – Claire Ballinger and Ali Rowsell

Around one in 500 people has Parkinson’s, a condition affecting movement, and sometimes also causing pain, tiredness and low mood.  There is currently no cure; however drugs and rehabilitation therapies can help to relieve the symptoms.  Although not the same for everyone, Parkinson’s is progressive, and in the later stages, people often require additional help.

Continue reading The importance of carers in support for people with Parkinson’s – Claire Ballinger and Ali Rowsell

Where do people want to draw the line? Making shared decisions about treatment. Professor Alison Richardson

Professor Alison Richardson is Clinical Professor of Cancer Nursing and End of Life Care at the University of Southampton and University Hospital Southampton NHS Foundation Trust
Professor Alison Richardson is Clinical Professor of Cancer Nursing and End of Life Care at the University of Southampton and University Hospital Southampton NHS Foundation Trust

Many patients whose condition becomes worse during their stay in hospital face uncertainty about the likelihood of recovery. For patients, families and healthcare professionals deciding on the best thing to do can be hard.

Continue reading Where do people want to draw the line? Making shared decisions about treatment. Professor Alison Richardson

Involving patients and the public in research: Reflecting back and looking ahead

By Claire Ballinger and Mark Stafford-Watson – Chairs, Wessex Inclusion in Service Design and Delivery (WISeRD) group

It’s the end of our first year in CLAHRC Wessex, we have been thinking about our progress in involving patients and the public in our work (or PPI as it’s called), and reviewing where our focus should be for the coming year.  We have settled on five strategic aims:

  • Develop our capacity for patient and public involvement (PPI) in research and implementation programmes
  • Promote our CLAHRC Wessex activities to the wider public (public engagement)
  • Evolve and measure ways to include patients and the public to identify research priorities
  • Develop a group of patient and public researchers
  • Measure the impact of patient and public involvement within CLAHRC Wessex

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The GENIE is out of the bottle – but who controls it? – Dr Anne Kennedy, Principal Research Fellow, Faculty of Health Sciences, University of Southampton

Here at the CLAHRC Wessex we have been using and developing an interactive tool called GENIE . This is designed to engage and link people with long-term health conditions to social activities and support they value and find useful.

We have been working on the Isle of Wight with the My Life a Full Life team and other organisations to see how we can integrate GENIE as part of day-to-day support for people. Last week we had our first meeting, after months of using the system there to work towards making GENIE ‘Business as Usual’.

Continue reading The GENIE is out of the bottle – but who controls it? – Dr Anne Kennedy, Principal Research Fellow, Faculty of Health Sciences, University of Southampton