After several months of thinking ‘I think I’d like to learn how to swim’, last year, I finally made the decision to enrol in adult swimming lessons. I was motivated, I felt fit and so was confident this was something I was capable of doing (and I must admit the lessons were also convenient to get to). Psychologists might say that I had high “self-efficacy”. Self-efficacy is the belief that you will successfully be able to complete a task, activity or performance.
However, my high self-efficacy did not necessarily mean that everything went smoothly or to plan. In the hours leading up to the first lesson I started to make excuses to myself and almost (spoiler alert!) didn’t go. I suspect you’re wondering what has all this got to do with anything?
Dr. Sara A Morgan is an NIHR CLAHRC Research Fellow in Public Health – based at Southampton General Hospital
What’s the problem?
Official crime figures from 2013/14 show that 8% of women and 4% of men have experienced domestic violence within the previous year. In the past there has understandably been a strong focus on supporting these victims, but later there was a move to tackle the root cause, involving community programmes aimed at the perpetrators of domestic violence.
“I think there’s always been just the priority being the victim and there’s a lot of sense behind that because obviously those people need to be protected but, unless we actually deal with the source of the problem which is the perpetrator, we’re never going to stop that victim cycle.”
Not so long ago CLAHRC East of England Research Capacity in Dementia Care Programme (RCDCP) joined forces with the University of Southampton Alzheimer’s Society Doctoral Training Centre to provide a European Summer School for 17 dementia care doctoral students. Hosted by the University of Linköping in Sweden, the programme enabled participants to share ideas, build international partnerships, and learn from leaders in dementia care research.
Professor Jackie Bridges explains some of the lessons we can learn about caring for people with dementia.
She was particularly struck by the approach of a day centre she visited whilst on the trip.
When people talk about managing mental health the most frequent thing to do is to recourse to self help or looking to services to help. There is less recognition of the power of social networks for help and support based on connections and reciprocity around us.
Separating out the individual from their need for other people and ability to mobilise resources in order to manage effectively, has meant that the notion of a personal community of support (the array of personal ties with which people are located and embedded) has not tended to be included in understanding or responding to mental health need.
Now there’s a nascent social movement about networks.
It’s common for academics to be found popping up at conferences and even music festivals these days, telling people what they have been finding out in an effort to spread the word and get the message heard. This was just the activity we were engaged in and one of the benefits for us as academics is that we also get to hear about others work and this gives us ideas.
The MWF takes place over 3 days in London . The first day takes place in the Houses of Parliament where Baroness Hollins hosts panel discussions on aspects of mental well-being and the next two days take place predominantly in City Lit, a further education college that serves London. Throughout these two days there is a plethora of wonderful sessions that can be accessed, free of charge, by those registered for the event. Attendees include those with lived experience of mental distress, both themselves and as carers; interested members of the public; policy makers; commissioners and professionals from every group with a role in helping those in mental distress.
It really is the most eclectic, informative and creative space to find yourself in. A place where many, sometimes opposing, worlds collide.
Our talk was full, so we had a great audience of interested people who asked questions all the way along and shared their own experiences of being pet owners. What stood out particularly, and resonated with the findings from our study, was the way in which pets give unconditional love which is consistently there regardless of how we are feeling.
Pets are trusted more than people many said and seem to have an intuitive understanding of their owners, knowing just when to demand to go out or to curl up for a cuddle.
For me most important was the knowledge, which we gained from the study, that for our cohort none of the participants had their pets considered as important network members as part of their care and yet all that had pets stated that they were essential.
The room completely agreed with this and the professionals in the room were clear that pets will be considered more seriously in future, in fact two of the attendees stated that they were relieved to have some research evidence to back up something they had wanted to attend to for a while but had felt reluctant to do so in case they were laughed at.
In 2015 I was fortunate enough to be awarded some funding from Solent NHS Trust to explore the networks of people with long term mental health issues. This project looked at how people manage their networks day-to-day and when they are in crisis, looking to see what the differences were between networks and how people negotiate the relationships within them. All the participants were recruited from community groups and many of the participants were students of a local Recovery College*.
Could this statement be the one that encapsulates the perception that mental health services are frequently unable to help people with mental health issues?
A research participant in a study I’m conducting into support networks of people with long term mental health problems outlined what she saw as some of the problems with her encounters with health professionals in the mental health system.
I’ve been a clinician in mental health for many (many) years I have heard tales of woe and distress. They have often been so devastating, and at the same time, inspirational as one hears about the efforts people make to overcome the most extreme situations. I have always felt a sense of privilege at being allowed into these stories and as a researcher this privilege feels somehow even more intense.
Professor Anne Rogers explains how weaker social ties play a role in helping people manage a long term illness.
With ever more attention on the NHS and how many nurses and doctors are needed to give people the best care, one part of the health equation is going unnoticed – What attention is being paid to the role of the patient and their extended network of relationships? In early 70s West Coast America a piece of research by Anselm Strauss and colleagues examined a set of questions on ‘self-care’.
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