As PPI Champion for the Fundamentals of Care theme within NIHR CLAHRC Wessex, I’ve a great experience and opportunity to be an equal member of a team developing the research priorities for this area of work. Crucially, these weren’t priorities that we developed together in a closed room, but rather they were co-produced at several stages.
The recognition of the increasing emotional significance of relationships between people and animals takes on particular salience for people living with a long term mental health problem. Demonstrated benefits from pet ownership include reduced stress, improved physical health, increased social interaction and reduced loneliness.
Lindsay Welch is the Integrated COPD Team Lead; Solent NHS Trust and UHS NHS Foundation Trust
COPD or Chronic Obstructive Pulmonary Disease is a preventable disease and is one of the world’s biggest killers – it causes a narrowing of the breathing tubes and air sacs in our chest and lungs, reducing the amount of oxygen we can get into our bodies. There are several causes, air pollution and exposure to dust, but the main culprit is smoking. It is estimated that over three million people with COPD in the UK but only a quarter of those are diagnosed
Doctor Simon Fraser is part of a team conducting the Hampshire Acute Kidney Injury study which is part of the Public Health and Primary Care theme of NIHR CLAHRC Wessex. He writes:
Kidneys are incredibly important to the human body. Among other things, they deal with fluids that we drink and help to regulate important functions like blood pressure.
The inaugural meeting of COPD Wessex Integrated Network Group (COPD WING) took place on the 9th November 2016 in Southampton.
The group has been set up to bring together people from across the Wessex region who has a vested interest in Chronic Obstructed Pulmonary Disease.
Health care professionals and patient groups attended the evening along with representatives from local Clinical Commissioning Groups, South Central Ambulance Service, smoking cessation services and the Wessex Academic Health Science Network.
The everyday management of a long-term condition is almost never done by individuals in isolation from others. The networks of relationships around people may include family members, friends, neighbours, colleagues, health professionals and even pets all of who play an important role in the management of long-term conditions. This is through, for example, their knowledge, support, help with accessing services, resources and valued activities.
There comes a point in everyone’s life when they get news that changes their life…of course it’s not always bad. Think “you’ve got the all clear” or “you’re going to have a baby”.
But what if that’s not so good. “You have diabetes” or “you have developed COPD”. In those cases firstly you might ask the doctor or nurse- “what can you do?” and “how is it going to affect me?”
These are the words from the people who help design, review and take part in health research here in the Wessex region. It’s commonly called Public Involvement or sometimes PPI, but it basically comes down to involving people in research that makes a difference in our community. People become involved for several and varied reasons; as a carer, someone with a health condition or as someone with an interest – what’s important is that they make a difference and we couldn’t be without them.
In 2015 I was fortunate enough to be awarded some funding from Solent NHS Trust to explore the networks of people with long term mental health issues. This project looked at how people manage their networks day-to-day and when they are in crisis, looking to see what the differences were between networks and how people negotiate the relationships within them. All the participants were recruited from community groups and many of the participants were students of a local Recovery College*.