Having conversations about the best course of action in the event a person’s condition deteriorates is difficult for everyone involved, whether it is the patient themselves, their family or carer and the clinician.
After an initial study on Advance Care Planning (A. Richardson, S. Lund1), research into the current application of treatment escalation plans across the country, and early engagement with some of the acute trusts in the Wessex region, it was apparent there was a desire to improve this process.
My colleagues and I recently published a paper which describes how we created a model to show how people with diabetes become less dependent on primary care and more able self-managers.
We used maps created by general practice staff to show how their patients progress through the system following diagnosis.
In the current system, once treatment has been decided on, the frequency of appointments decreases and people are expected to self-manage with support from regular review appointments. Seeing the model and talking it through with GPs and others helped us to consider some of the shortfalls in the system.
I’ve been a clinician in mental health for many (many) years I have heard tales of woe and distress. They have often been so devastating, and at the same time, inspirational as one hears about the efforts people make to overcome the most extreme situations. I have always felt a sense of privilege at being allowed into these stories and as a researcher this privilege feels somehow even more intense.
Professor Anne Rogers explains how weaker social ties play a role in helping people manage a long term illness.
With ever more attention on the NHS and how many nurses and doctors are needed to give people the best care, one part of the health equation is going unnoticed – What attention is being paid to the role of the patient and their extended network of relationships? In early 70s West Coast America a piece of research by Anselm Strauss and colleagues examined a set of questions on ‘self-care’.
Managing our mental health is something we all do and for many of us it is a fairly straightforward process, but a significant number of us are likely to find it rather more complex, sometimes needing support from our GP or mental health services. As part of our research in CLAHRC Wessex we’re looking at how people use their social networks to improve and manage their mental health.
In our work looking at how people’s social networks help them in living with a long-term condition, we have been able to show the vital role carers play in keeping people actively engaged with social activities. We know that having a diverse range of support and activities are important for health and wellbeing and carers are the key link in helping those they care for access enjoyable social events by providing both encouragement and transport.
Many patients whose condition becomes worse during their stay in hospital face uncertainty about the likelihood of recovery. For patients, families and healthcare professionals deciding on the best thing to do can be hard.
By Claire Ballinger and Mark Stafford-Watson – Chairs, Wessex Inclusion in Service Design and Delivery (WISeRD) group
It’s the end of our first year in CLAHRC Wessex, we have been thinking about our progress in involving patients and the public in our work (or PPI as it’s called), and reviewing where our focus should be for the coming year. We have settled on five strategic aims:
Develop our capacity for patient and public involvement (PPI) in research and implementation programmes
Promote our CLAHRC Wessex activities to the wider public (public engagement)
Evolve and measure ways to include patients and the public to identify research priorities
Develop a group of patient and public researchers
Measure the impact of patient and public involvement within CLAHRC Wessex
Poor nutrition in hospital inpatients is a problem that is becoming increasingly recognised both in the UK and worldwide, and requires a multifaceted approach, including protected meal times, red trays and protein and energy supplementation as required. One factor that particularly affects older inpatients is the amount of assistance they receive at mealtimes. Time-pressured nursing staff may not have the time they need to help patients with their meals.
In the many discussions I’ve had people about our newly established and growing CLAHRC programme of research and implementation, it often centres on the question of what is Applied Health Research? Is it different from more conventional bio-medical research? It made me think that we need to be a bit more explicit about this thing called Applied Research. So here goes.
This site promotes independent research by the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Funding Scheme. The views expressed in this blog are those of the author(s) and not necessarily those of the NHS, the National Institute for Health Research or the Department of Health