Many patients whose condition becomes worse during their stay in hospital face uncertainty about the likelihood of recovery. For patients, families and healthcare professionals deciding on the best thing to do can be hard.
I’m Ryan Buchanan, a specialist registrar doctor in liver disease and a PhD student carrying out research for NIHR CLAHRC Wessex. My project is centred on Hepatitis C in the Isle of Wight community.
Hepatitis C is a virus, which unlike other viruses such as ‘flu’ or the common cold directly affects your liver. It is usually passed from person to person via blood and develops into a long lasting infection. The virus actually causes very few symptoms allowing it to hide within the body making people unaware they carry it.
Living with a serious long-term condition is often hard and complex work. My team and I are interested in finding ways to reduce complexity and lift the burden for people with these conditions, and their families, at end of life.
To help us think about the kind of research questions we should be asking we held a research forum at Freemantle Community Centre in Southampton. We invited people with a range of conditions to join us and to inform our work.