Dr Chris Kipps – Dementia. Younger people, brain scans and how we are trying to understand the bigger picture

So it’s been a few months since the last update on our work, so where are we now?

Well our Younger Onset Dementia Assessment project is now starting to interview patients, carers and clinicians about their experiences of care in younger onset dementia. This will help define our assessment toolkit for testing and implementation in a wider group of people with younger onset dementia. An important part of this study will be to improve the recording of quality of life (QoL) in people with younger dementia, and helping better understand what factors influence QoL in this particular group of patients and their carers.

Involving patients and the public in research: Reflecting back and looking ahead

By Claire Ballinger and Mark Stafford-Watson – Chairs, Wessex Inclusion in Service Design and Delivery (WISeRD) group

It’s the end of our first year in CLAHRC Wessex, we have been thinking about our progress in involving patients and the public in our work (or PPI as it’s called), and reviewing where our focus should be for the coming year.  We have settled on five strategic aims:

• Develop our capacity for patient and public involvement (PPI) in research and implementation programmes
• Promote our CLAHRC Wessex activities to the wider public (public engagement)
• Evolve and measure ways to include patients and the public to identify research priorities
• Develop a group of patient and public researchers
• Measure the impact of patient and public involvement within CLAHRC Wessex

APPLIED HEALTH RESEARCH – GET A GRiP – Professor Anne Rogers Research Director of the NIHR CLAHRC Wessex

In the many discussions I’ve had people about our newly established and growing CLAHRC programme of research and implementation, it often centres on the question of what is Applied Health Research? Is it different from more conventional bio-medical research?  It made me think that we need to be a bit more explicit about this thing called Applied Research. So here goes.

Can we discuss end of life care with patients with COPD?

Nuno Caixinha Tavares – Staff Nurse at Queen Alexandra Hospital
Clinical Academic Fellow in the University of Southampton
NIHR CLAHRC Wessex – Theme 1 – Integrated Respiratory Care

I’m Nuno Tavares, a staff nurse at Queen Alexandra Hospital and I’m also a PhD student carrying out research for NIHR CLAHRC Wessex and Portsmouth Hospitals NHS Trust. My research is about improving end of life care for patients with COPD.