So it’s been a few months since the last update on our work, so where are we now?
Well our Younger Onset Dementia Assessment project is now starting to interview patients, carers and clinicians about their experiences of care in younger onset dementia. This will help define our assessment toolkit for testing and implementation in a wider group of people with younger onset dementia. An important part of this study will be to improve the recording of quality of life (QoL) in people with younger dementia, and helping better understand what factors influence QoL in this particular group of patients and their carers.
When dementia occurs in people under the age of 65 years, it often presents in unusual and diagnostically challenging ways. There may be changes in language, behaviour or navigation difficulties, and frequently, it’s not Alzheimer’s disease, but other forms of dementia such as frontotemporal dementia.
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