Involving patients and the public in research: Reflecting back and looking ahead

By Claire Ballinger and Mark Stafford-Watson – Chairs, Wessex Inclusion in Service Design and Delivery (WISeRD) group

It’s the end of our first year in CLAHRC Wessex, we have been thinking about our progress in involving patients and the public in our work (or PPI as it’s called), and reviewing where our focus should be for the coming year.  We have settled on five strategic aims:

• Develop our capacity for patient and public involvement (PPI) in research and implementation programmes
• Promote our CLAHRC Wessex activities to the wider public (public engagement)
• Evolve and measure ways to include patients and the public to identify research priorities
• Develop a group of patient and public researchers
• Measure the impact of patient and public involvement within CLAHRC Wessex

Are you 1 of the MISSING 200? – Tackling the Hepatitis C virus by Bicycle

I’m Ryan Buchanan, a specialist registrar doctor in liver disease and a PhD student carrying out research for NIHR CLAHRC Wessex. My project is centred on Hepatitis C in the Isle of Wight community.

Hepatitis C is a virus, which unlike other viruses such as ‘flu’ or the common cold directly affects your liver. It is usually passed from person to person via blood and develops into a long lasting infection. The virus actually causes very few symptoms allowing it to hide within the body making people unaware they carry it.