Accident and Emergency wait times seem to be constantly in the news. Less commonly but equally importantly are headlines that waiting lists for elective operations and procedures are on the rise. Although these topics hit our headlines regularly there is actually very little evidence and understanding behind the reasons for these changes in NHS services, and how the NHS can take positive action to cope with these issues.
From what we understand a lot of the currently held beliefs around the causes for pressure on NHS services come from very basic, non peer-reviewed, and potentially flawed analyses. It does not need too much explaining that making decisions based on these might be a bad idea.
The respiratory nursing team in Southampton came away with two awards from the Association of Respiratory Nurse Specialists (ARNS) conference in May.
Emma Ray won best Poster Spoken Session. She said:
I was very pleased to have the opportunity to share the findings of our world COPD day event addressing smoking prevention in school children in Southampton at the ARNS conference. It was the brilliant idea of our PPI champion Mark Stafford-Watson who sadly passed away last year and is truly missed by our team.
Mark emailed me after that school event to say:
“You don’t know how proud I am of the team who turned up yesterday and made the session so good, you very kindly said that it was my idea, but an idea is not much use unless someone does something with it, and I recognise the amount of effort you put in to make that idea worthwhile, thank-you so much”
Mark made a true impact to the direction and value of all our respiratory projects and worked hard to be a brilliant advocate for patients. The world COPD day event was a true reflection of his desire to improve the lives of people in Southampton and he was passionate to address preventing smoking uptake in children, which should be a key priority in the prevention of COPD and the impact it has on other lung conditions.
As our event last year was very positively received by the students and school staff alike, we are hoping to take this work forward and hold future events with secondary school students aimed at raising awareness of COPD and smoking prevention.
Kate Lippiet, won best poster for her work too. She was delighted.
My PhD seeks to understand what people living with COPD and lung cancer find difficult about their treatment and what they find helps them with carrying out their treatment. I hope that my research will identify areas which healthcare professionals and managers can target to improve the experience of treatment for people living with COPD and lung cancer. I was pleased to present my PhD as a poster at the recent Association of Respiratory Nurses Specialist conference and to discover that my research findings resonated with the practical experience of clinicians who work with people living with respiratory disease. Winning best poster was a lovely bonus.
I would like to take this opportunity, like Emma, to emphasise the contribution of Mark Stafford Watson to my research. Mark practically helped the development of my research by reading and commenting on my study protocol and patient information literature. More importantly, he truly believed in the relevance of the research I am undertaking to the lives of people living with respiratory disease. I found his energy and enthusiasm of great help personally. He is much missed.
I remember being asked in my interview for nursing why I wasn’t applying to be a doctor. There’s no simple answer to ‘what nursing is’ or ‘what it means to me’ but the answer I gave then is probably as close as I’ll ever get.
I’m not that interested in disease but I am interested in people. Nursing is about supporting and helping people, often through their most difficult times. While it’s hard to distinguish this from many other caring professions the key (to me) is that the focus is on the person comes first and the rest follows.
We know that nurses miss or delay taking patients’ vital signs (such as pulse, temperature and blood pressure) at night. Until now, no one knew why.
The NHS expects hospitals to use ‘Early Warning Scores’ to measure how ill someone is. These are based on the observation of ‘vital signs’ – measurements of things like pulse, temperature, blood pressure and breathing speed. The higher the score, the more often someone’s vital signs should be checked. This is so staff can spot the early danger signs of someone becoming very unwell, in time to help them.
Your local hospital will probably have an ‘early warning protocol’ that says how often people should be checked according to their early warning score. At higher levels observations will need to be done in the middle of the night. Despite this, we know that nurses are much less likely to do the observations that are expected to be done at night.
It’s common for academics to be found popping up at conferences and even music festivals these days, telling people what they have been finding out in an effort to spread the word and get the message heard. This was just the activity we were engaged in and one of the benefits for us as academics is that we also get to hear about others work and this gives us ideas.
The MWF takes place over 3 days in London . The first day takes place in the Houses of Parliament where Baroness Hollins hosts panel discussions on aspects of mental well-being and the next two days take place predominantly in City Lit, a further education college that serves London. Throughout these two days there is a plethora of wonderful sessions that can be accessed, free of charge, by those registered for the event. Attendees include those with lived experience of mental distress, both themselves and as carers; interested members of the public; policy makers; commissioners and professionals from every group with a role in helping those in mental distress.
It really is the most eclectic, informative and creative space to find yourself in. A place where many, sometimes opposing, worlds collide.
Our talk was full, so we had a great audience of interested people who asked questions all the way along and shared their own experiences of being pet owners. What stood out particularly, and resonated with the findings from our study, was the way in which pets give unconditional love which is consistently there regardless of how we are feeling.
Pets are trusted more than people many said and seem to have an intuitive understanding of their owners, knowing just when to demand to go out or to curl up for a cuddle.
For me most important was the knowledge, which we gained from the study, that for our cohort none of the participants had their pets considered as important network members as part of their care and yet all that had pets stated that they were essential.
The room completely agreed with this and the professionals in the room were clear that pets will be considered more seriously in future, in fact two of the attendees stated that they were relieved to have some research evidence to back up something they had wanted to attend to for a while but had felt reluctant to do so in case they were laughed at.
More and more of us are looking online for information to support our health (see Chris Allen’s work on support in Online Communities). In my research, I have found that the ability to get hold of that information and support, which is personal to you, can make a huge difference to how well you are.
I’m focusing on insulin pumps, which are an alternative means to deliver insulin to people with diabetes – compared to the more traditional multiple daily injections.
Insulin pumps have been developed to help people with Type 1 diabetes manage the condition better; both in terms of their quality of life and by more closely resembling a fully-functioning pancreas.
However, introducing a new health technology to an already difficult to manage condition is not necessarily simple, or easy.
Let me tell you a secret… I am proud of being a nurse but when I was 18 I wasn´t that sure. Finally, advised by friends and family I ended up starting the nursing degree at an excellent and powerful University in Spain… so that was a fair trade for me… Ok… I will do nursing!
Like many other nurse students, at that time I faced several fundamentalcrises and I even thought of quitting nursing because I had never thought of myself as a nurse and sometimes others’ pain and disgrace gave me the chills.
It was palpable with research geekery excitement while travelling to Nottingham for the 2017 Health Services Research UK Conference. I needed this, I thought, an opportunity for positivity, to talk enthusiastically about how we as researchers can help sustain the future of the NHS and wider health services. The conference didn’t disappoint.
We are all too aware of the popular rhetoric that consumes newsfeeds and social media channels, with headlines like ‘The NHS is in Crisis’ and ‘too many people are pitching up to A&E’. All doom and gloom. The conference was a perfect antidote to this. While there are no panaceas to these ongoing issues, my fellow health services researchers offered positivity and direction against the troubling backdrop of public service austerity and Brexit uncertainty.
The event in Southampton attracted organisations* from across the Wessex region and beyond and a wide range of people including the public, paramedics, nursing staff, clinicians, managers and researchers.
Many stakeholders were represented bringing together 44 delegates, all there to examine and reflect on whether the ReSPECT approach to decision making for emergency care should be adopted.
Article by Martin Simpson-Scott, PPI Coordinator NIHR CLAHRC Wessex
Mark Stafford-Watson is one of our NIHR CLAHRC Wessex public contributors. He’s also ‘PPI Champion’ for our Theme 1 research team (Integrated Respiratory Care) – of particular personal relevance to Mark, as he has a long-term respiratory condition.
This site promotes independent research by the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Funding Scheme. The views expressed in this blog are those of the author(s) and not necessarily those of the NHS, the National Institute for Health Research or the Department of Health